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Resources
More links and addresses for
information on brain injury.
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Acquired Brain Injury/ ABI |
http://www.tbi.org
The Perspectives Network, Inc. is an international tax-exempt, non-profit organization
founded by a survivor of acquired brain injury in 1990. As evidenced
by the services its offers, TPN's primary focus is communication
between survivor s, family members/ caregivers/friends, professionals
and community members in order to create positive changes and
enhance public awareness and knowledge of acquired brain injury.
P. O. Box 1859, Cumming GA 30128-1859
TPN@tbi.org
Direct Voice/Fax: 770/844-6898
Voice Mail: 800/685-6302 (USA Only ) or 334/639-5037
http://www.obia.on.ca
Since 1986, the Ontario Brain Injury
Association has been committed to enhancing the quality of
life for those living with an acquired brain injury.
http://www.stroke.org
National Stroke Association (NSA) is the only national voluntary health care organization
focusing 100 percent of its resources and attention on stroke
prevention, treatment, rehabilitation, research and support for
stroke survivors and their families. NSA is dedicated to reducing
the incidence and impact of stroke by changing the way stroke
is viewed and treated.
www.opportunityproject.com
Opportunity Project
Our non-profit organization, located
in Millburn, NJ, serves individuals with acquired brain injury.
Our services provide vocational assistance, socialization, computer
training, and resources to all people who have experienced a brain
injury. Further, our Clubhouse program provides participants with
a new and exciting atmosphere, and offers activities and interaction
which are found to be most beneficial to the community reintegration
process.
973-275-5200.
http://www.strokenetwork.org
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Children and Brain Injury |
http://www.shrinershq.org
Shriners Hospitals for Children is
a network of 22 hospitals that provide expert, no-cost orthopaedic
and burn care to children under 18. Shriners Hospitals are celebrating
their 75th anniversary in 1997.
http://library.advanced.org/11799
A page designed for children which
deals with understanding visible and invisible disabilities. Excellent
resources section provides links to information about children's
disorders, including ADD and communication disorders as well as
government and education links.
http://www.nichcy@aed.org
National Information Center For Children
And Youth With Disabilities
P.O. Box 1492
Washington DC. 20036
Questions may be posted on my message board at
Coma
Questions and Brain Injury Support
The Coma Recovery Association, Inc.
100 East Old Country Road, Suite
9
Mineola, New York 11501
Telephone: 516-746-7714
Fax: 516-746-7706
Email
service@comarecovery.org
Web http://www.comarecovery.org
A Not-For-Profit Organization
The CRA is a not-for-profit
organization initially formed by a group of families in 1980.
Its purpose is to help the families of coma and head injury survivors
by providing:
- Information and referrals to enable them
to make informed choices regarding treatment, rehabilitation
and socialization alternatives.
- Mutual aid/support from others who struggle
with similar concerns.
- A voice to express the common needs of families
and patients before governmental and other agencies which can
affect the quality of care, education and research.
http://sccm.org
This site is designed for everyone
who seeks information on critical care medicine. SCCM is
a not-for-profit scientific and educational organization dedicated
to care of the critically ill and injured.
http://www.amtrauma.org
The American Trauma Society (ATS) is a voluntary nonprofit organization dedicated to
the prevention of trauma and the improvement of trauma care. Trauma
is the number-one killer of U.S. residents under the age of 37
and the fourth-leading cause of death of all ages.
http://janweb.icdi.wvu.edu/kinder
Americans with Disabilities Act
Document Center
ADA Statute, Regulations, ADAAG (Americans
with Disabilities Act Accessibility Guidelines), Federally Reviewed
Tech Sheets, and Other Assistance Documents.
http://www.disabilityrights.org
The Council for Disability Rights
Keep current on changing laws and ADA
challenges.
http://www.ralphroberts.com/chickensoup.html
Millions of people throughout the world
have been inspired by the phenomenally successful series of Chicken
Soup for the Soul books by Mark Victor Hansen and Jack Canfield.
Sample stories are available on this site, which will be included
in a new book on people with disabilities.
http://www.tbichat.org/docs2.htm
A great page for benefits and resources.
http://www.rxlist.com
The Internet Drug Reference
http://pharminfo.com/pin_hp.html
A useful website which offers information
regarding drugs, and articles concerning drugs.
http://debra.dgbt.doc.ca:80/~andrew/epilepsy/FAQ.html#basic
Frequently Asked Questions about Epilepsy
http://www.check-it-out.org
Assistive Equipment
http://www.oswego.edu/~voninski/deathAndDying/#grief
Offers several links on bereavement,
death and dying.
http://www.indiana.edu/~hperf558/res_prac.html
Practical Grief Resources: Grief in
a Family Context
http://TheArc.org/faqs/grief.html
MANAGING GRIEF BETTER: People With
Developmental Disabilities by Professor Sheila Hollins
Professor Hollins shares thoughts on helping persons
with developmental diasability understand and cope with loss and
grief.
http://www.tbilaw.com
The Brain
Injury Information Page
Attorney Gordon S. Johnson, Jr.
http://subtlebraininjury.com
A good source of information, with
articles and resources.
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Life Management/Rehabilitation |
http://www.brainbook.com
The BRAIN BOOK® System is a unique educational program using the BRAIN BOOK®,
a customized life manager/day planner especially designed to meet
the complex needs of persons with brain injury.
http://www.aphasia.com
LingraphiCARE
speech language rehabilitation unlocks communication skills, especially
for adults with acquired language disorders, such as aphasia,
apraxia, and dysarthria. The key to increased effectiveness is
the Lingraphica® System, a clinically proven, highly stimulating,
interactive tool appropriate for the mature adult.
http://www.asha.org
The American Speech-Language-Hearing
Association (ASHA) is the professional,
scientific, and credentialing association for more than 87,000
audiologists, speech-language pathologists, and speech, language,
and hearing scientists.
This site is a resource for ASHA members,
persons interested in information about communication disorders,
and for those wanting career and membership information.
American Speech-Language-Hearing Association
10801 Rockville Pike
Rockville, Maryland 20852
800-498-2071 Voice
301-897-5700 TTY
301-571-0457 Fax
http://www.naric@capaccess.org
National Rehabilitation Information
Center:
8455 Colesville Road
Suite 935
Silver Spring, MD. 20910-3319
project@nac.net
Opportunity Project is a community reintegration program located in Millburn,
NJ. Participants in this program are members, not patients or
clients. Members are given encouragement and support as they continue
to overcome obstacles brought on by their brain injuries.
Opportunity Project is run for and
by the members. Members are treated as individuals and have the
option to be active in all aspects of the program.
Opportunity Project provides members
with the opportunity to put skills in action by participation
in the many functions of the Clubhouse such as, fundraising, employment
preparation, education, seminars, and job searches.
Since they know what a person who has
brain injury is going through, members of Opportunity Project
can give informed support and advice. Talking to each other about
difficulties in our lives gives us the sense of being understood
and not being alone.
TOURO
REHABILITATION CENTER
Are you searching for a comprehensive
program which offers specialized services for:
BRAIN INJURY, STROKE, OTHER NEUROLOGICAL
INJURIES?
Touro can help.
We offer programs for individuals who
have experienced traumatic brain injuries, strokes or other neurological
impairments including:
- RESIDENTIAL
- DAY TREATMENT
- OUTPATIENT CARE
CALL 504-897-8646
1401 Foucher Street
New Orleans, Louisiana 70115
http://www2.iatrogenic.org/iatrogenic
American Iatrogenic Association
The American Iatrogenic Association
is devoted to the study and reporting of illness caused by the
medical profession, especially by physicians. Despite the rare
public discussion of iatrogenic illness, it is a significant cause
of disease and death for Americans.
http://www.dundee.ac.uk/neurosurgery/eljhome.htm
The Virtual Neuro-Surgical Index and
Neurosurgery at Dundee University
http://www.pain-clinic.com
The Vancouver Pain Clinic offers residential
and outpatient pain management programs to residents of Canada
and the Northwest United States. Programs are offered by multidisciplinary
teams consisting of professionals from the disciplines of psychology,
medicine, physiotherapy, occupational therapy, pharmacy and vocational
counselling. Massage therapy and an activity program are also
offered to persons in our Residential Programs.
For referrals or information by telephone
Call 1-604-263-4998
http://www.circleoffriends.org
The Circle of Friends is part
of the American Paralysis Association (APA), a non-profit
organization founded in 1982 to encourage and support research
to find a cure for paralysis caused by spinal cord injury and
other central nervous system disorders.
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State Workers' Compensation Pages |
http://www.wc.les.state.fl.us/DWC/index.htm
Florida Division of Workers' Compensation
Department of Labor and Employment Security
http://www.al-anon-alateen.org
AL-ANON
(and ALATEEN for younger members) is a worldwide organization
that offers a self-help recovery program for families and friends
of alcoholics whether or not the alcoholic seeks help or even
recognizes the existence of a drinking problem. Members give and
receive comfort and understanding through a mutual exchange of
experiences, strength and hope. Sharing of similar problems binds
individuals and groups together in a bond that is protected by
a policy of anonymity.
http://140.254.20.2/ovchome/Proj1-2/DrunkenSailor.html
An article about substance abuse and
brain injury treatment.
http://140.254.20.2/ovchome/Proj3-5/abusescreen.html
A quick reference to identify the need
for further screening and/or assessment for substance abuse problems
or risk to develop substance abuse problems.
http://140.254.20.2/ovchome/Proj3-5/Proj3-5.html
Treating Substance Abuse After Brain
Injury.
http://140.254.20.2/ovchome/Proj1-2/Proj1-2.html
Preventing Substance Abuse After Traumatic
Brain Injury.
http://www.brainandspinalcord.org/
The web's leading resource for brain injury and spinal cord injury survivors.
http://www.home.tbinet.org/raf
Recovery Awareness Foundation
Surviving Brain Injury
http://www.cdc.gov
Centers for Disease Control and
Prevention (CDC)
http://www.driveninc.com/~jlyon/index.html
John and Clara Lyon's Home Page offers
information and links on Traumatic Brain Injury and Epilepsy.
This site also offers information on how to subscribe to John
and Clara's online support groups for caregivers and survivors.
http://www.prairienet.org/aann/aannce.html
"Cerebral Concussion and the Year
After"
This superb offering has been prepared by Mary Kay
Bader, MSN, CNRN, a clinical nurse specialist at the Georgetown
University Medical Center in Washington, DC.
Brought to you by the American Association of Neuroscience
Nurses. Contact them at
AssnNeuro@aol.com
http://www.canddwilson.com/tbi/tbiepil.htm
This site is maintained by Chris and
DebbieWilson. It offers links to the various resources available
on the internet for traumatic brain injury, acquired brain injury,
and epilepsy.
http://valhalla.vossnet.co.uk/d/dickibus
This site provides links and information
on Traumatic Brain Injury, Epilepsy, and Spinal Cord Injuries.
HTTP://www.neuro.pmr.vcu.edu
National Resource Center for Traumatic
Brain Injury
http://www.petard.com
This page focuses on the sharing of
any and all information relating to TBI (Traumatic Brain Injury),
ABI (Acquired Brain Injury) and Abuse.
Traumatic Brain Injury Program
Tennessee Department of Health
1-800-882-0611
http://members.aol.com/MYJOBISTV/Kennel.html
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Traumatic Brain Injury Archives |
The TBI-archives are at
http://www.sasquatch.com/tbi/last/index.html
You can get the last month or so of
messages, sorted by thread, date or sender.
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Traumatic Brain Injury Publications |
http://www.olywa.net/bmp/bodymind.htm
Keeping professionals and patients
up-to-date with all of the current medical literature on conditions
that affect millions of people.
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Traumatic Brain Injury Statistics |
http://www.connix.com/~dpyers/bia/tbistats.html
Brain Injury Statistics
Source: Interagency Head Injury Task
Force Reports, National Institute of Neurological Disorders and
Stroke, National Institutes of Health, Bethesda, MD.
http://www.cdc.gov/ncipc/dacrrdp/tbi.htm
Epidemiology of Traumatic Brain Injury
in the United States National Center for Injury Prevention and
Control Centers for Disease Control and Prevention.
http://www.nsc.org
National Safety Council
1121 Spring Lake Drive
Itasca, IL 60143-3201
Voice: (630) 285-1121
Fax: (630) 285-1315
A not-for-profit, non-governmental
international public service organization.
http://brain.mgh.harvard.edu
Brain Tumor Center - links to information
about the treatment of glioma, astrocytoma, glioblastoma and other
brain
tumors at Massachusetts General Hospital and Harvard.
http://www.beyondbook.com
Beyond the Road's End - true story
of a couple's journey through glioblastoma diagnosis, treatments,
support, death and
dying.
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University Medical Centers |
http://www.osu.edu/units/osuhosp/index.html
The Ohio State University Medical
Center
Rehabilitation: OSU Medical Center's Dodd Hall is ranked
among the top rehabilitation hospitals in the country by U.S.
New s & World Report. It is the only inpatient acute program
in central Ohio accredited by the Commission on Accreditation
of Rehabilitation Facilities.
http://www.teleport.com/~veda
Vestibular Disorders Association.
Offers information on vestibular disorders
and neuro-otology.
http://www.teleport.com/~veda/desord.html
Espanol
http://www.adworks.com/dizzy/vestib.html
http://www.adworks.com/dizzy/general.html
This Vestibular Disorders Hotsheet
is your starting point on the Internet when it comes to locating
information about dizziness, vertigo, balance problems, and other
vestibular disorders.
Also try:
http://www.handle.org/tbipg2.html
ftp://ftp.samurai.com/pub/lists/dizzinews
http://www.ears.com/MDG/index.html
Http://troost.rbdc.com/VERTIGO1.HTML-SSI#DOUTLINE
http://www.eyeassociates.com/textonly/index.htm
The Low Vision Centers of Indiana are
dedicated to providing professional low vision rehabilitation
for
patients with low vision or visual impairments secondary to stroke
or head injury.
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International Brain Injury
Pages |
http://traumacranien.org
France
Le Traumatisme Cranien est un fleau
silencieux... Il concerne 4000 personnes handicapees graves par
an en France : C'est un probleme de sante publique!
http://empresas.mundivia.es/braincenter
Spain
Valoración y Rehabilitación
del Daño Cerebral
Take a look at mild
brain injury, as I follow Sue through her daily life. This slightly
tongue in cheek look at mild brain injury is a graphics only site.
Sue and the Mild Brain
Injury.
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Attorney Gordon S. Johnson, Jr.
E-mail to: waiting.com
For legal questions call toll free:
1-800-992-9447
We are not medical professionals,
however we encourage your inquiries regarding both legal issues
and information on futher resources. Phone and email inquiries
will be received by the staff of the Brain Injury Law Office,
including Attorney Gordon
S. Johnson, Jr.
copyright ©2002 - 2013 Attorney
Gordon S. Johnson, Jr., All rights reserved.
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