Brain Injury Association of Wisconsin Looks for Volunteers for Sleep Study

0 comments

Posted on 29th December 2009 by Gordon Johnson in Uncategorized

, , , , ,

From the Brain Injury Association of Wisconsin:

The Sleep Wellness Institute Research Study
 
Many people with a traumatic brain injury may feel sleepy during the day, even if the injury happened years ago. Researchers are inviting those with a traumatic brain injury who feel sleepy during the day to take part in a clinical study. This study will assess how well a study medicine works for people who feel sleepy during the day as a result of traumatic brain injury.
 
To qualify you must:  
• Be age 18 to 65
• Have had 1 traumatic brain injury in the past 10 years
• Feel sleepy or tired during the day 5 or more days a week on average
• Be willing to take medical tests and a study medicine for 12 weeks
• Be available to sleep overnight in a sleep lab 5 times (some sleep labs are similar to hotel rooms)
 
This study will last 14 to 16 weeks (approximately 88 hours total) and include:  
•  7 visits
• 4 phone contacts
• 4 overnight sleep studies
• 4 daytime studies, three of which follow the overnight studies
 
If you qualify:  
• You may learn more about your sleep patterns
• You will receive study-related medical care and study medicine at no cost
• You may or may not benefit from study medicine
• Compensation for time and travel may also be provided 
 
If interested in participating in this research study, please contact Skyler Baake at 414-328-5637, skyler@sleepwell.org or Anne Papke at 414-477-4198, anne_papke@yahoo.com.
 
The Sleep Wellness Institute is located at 2356 S. 102nd Street, West Allis, WI  53227.  www.sleepwell.org
 
Sincerely,
Mark Warhus, Executive Director
Brain Injury Association of Wisconsin

Kudos for our Coma Advocacy

0 comments

Posted on 16th July 2008 by Gordon Johnson in Uncategorized

, , , , , , ,

From a user of https://waiting.com:

Attorney Gordon Johnson
http://subtlebraininjury.com
http://tbilaw.com
https://waiting.com
http://vestibulardisorder.com
http://youtube.com/profile?user=braininjuryattorney
g@gordonjohnson.com
800-992-9447
©Attorney Gordon S. Johnson, Jr. 2008


I was thumbing through some old email and I ran across yours. I remember writing you when my mother fell into coma. I remember how helpful this website was to me. How you help me and my family to understand what my mother was going through. I especially like how this site explained all the many different tubes and meaning of words surrounding coma. It educated me, it made me apart of the process. I enjoyed that very much.

My mother was 68 years old and lost the battle of recovery, however, this site helped me to deal with that also. This site gave me hope and kept me inform of what could happen. This site helped prepared me for the future without my mom. I thank God for giving me the strength to go though this and I thank you for educating me on coma so that I know what to pray for. My mother was laid to rest April 5, 2008. Thank you for being there for me.

Sonia

Kind Words about http://tbilaw.com from New Zealand

0 comments

Posted on 8th July 2008 by Gordon Johnson in Uncategorized

, , , , , ,

Below is an email we received with respect to our websites and web advocacy.

Attorney Gordon Johnson
http://subtlebraininjury.com
http://tbilaw.com
https://waiting.com
http://vestibulardisorder.com
http://youtube.com/profile?user=braininjuryattorney
g@gordonjohnson.com
800-992-9447
©Attorney Gordon S. Johnson, Jr. 2008

To Gordon Johnson and team, I thank you so much for your site. My name is Wendy and I am a 44 year old woman from New Zealand. I am a victim of Multiple TBI’s. As a child I sustained many head injuries (alot was me being knocked out), and have recieved many since. Most of which I have been knocked out many times, some for long periods, but mainly having the back of my head hitting the ground before any other part of my body. The worst injury I sustained was in 2001 when I had a home invasion and was beaten by 2 people wearing work boots being knoked for 8 or 9 hours. That was the second time I had been knocked out for that long. Other instances were being unconcious for up to 2 hours.

I found your site very easy to understand and informative. All of the symptoms you described were me wrapped up into one big ball. A brain damaged mess with what as a future?!

I do wish so much that your firm was over here in New Zealand as I have had no help from our ‘system’ as one may put it.
Thanks so much for putting this information on the net. People need to understand more about becoming brain damaged and how it affects the victim and how it changes them. Its helped me with my youngest daughter (13), as she never really understood why Mum wasnt like she used to be. I really hope that someday in someway that there will be some miracle cure for thoses affected by TBI or Multiple TBI’s..

Kindest Regards, Wendy. :o)

Brain Injury Association Urges Support for Wounded Warriors Act

0 comments

Posted on 8th May 2008 by Gordon Johnson in Uncategorized

, , , , , , , ,

From the Brain Injury Association of Wisconsin:

Dear Friends:

Take Action!
Urge Your Senator to Cosponsor The Caring for Wounded Warriors Act of 2008
BIAA (Brain Injury Association of America) has endorsed The Caring for Wounded Warriors Act of 2008 (S. 2921), legislation introduced on Monday, April 28 by Senator Hillary Rodham Clinton which would increase support for family caregivers of servicemembers with TBI. Several recommendations made by BIAA during the legislative drafting process were incorporated into the bill.

BIAA encourages you to urge your Senator to sign on as a cosponsor of this important legislation.

The bill would require two pilot programs to be implemented through the Department of Veterans Affairs, improving the resources available to those caring for returning service members with TBI.

The first pilot program, which would provide for training, certification, and compensation for family caregiver personal attendants for veterans and members of the Armed Forces with TBI, is very similar to a provision in last year’s Heroes At Home Act of 2007, which BIAA also strongly endorsed.

The second pilot program would leverage existing partnerships between Veterans Affairs facilities and the nation’s premier universities, training graduate students to provide respite care for families caring for wounded warriors suffering from TBI.
To urge your Senator to become a cosponsor of S. 2921, click on the ‘Take Action’ link in the upper right corner of this email.

The Brain Injury Association of Wisconsin and the Brain Injury Association of America support this legislation.

If you have trouble with the “Take Action” button at the top, please let BIAW know. To “Take Action” visit www.biausa.org. Click on Policy & Legislation, then Legislative Action Center, and then Take Action.

Sincerely yours,

Pat David
Brain Injury Association of WI
For those not in Wisconsin, your Senators and Congressmen can be found at http://www.senate.gov/ and http://www.house.gov/

TBI Act Signed into Law

0 comments

Posted on 4th May 2008 by Gordon Johnson in Uncategorized

, , , , , , ,

From the Brain Injury Association:


Brain Injury Association of America
Policy Corner E-Newsletter – May 2, 2008
A weekly update on federal policy activity related to traumatic brain injury
__________________________________________________________________

Dear Advocates:

This week marked a major legislative victory for the brain injury community, as President Bush officially signed into law legislation reauthorizing the TBI Act (S. 793) on Monday, April 28! Congratulations to all BIAA state affiliates, advocates, and national stakeholders who helped make TBI Act reauthorization a reality. To view a copy of BIAA’s official press release applauding this major accomplishment, please visit our website at http://www.biausa.org/policyissues.htm.

In other exciting news, BIAA proudly endorsed The Caring for Wounded Warriors Act of 2008 (S. 2921), legislation introduced on Monday, April 28 by Senator Hillary Rodham Clinton which would increase support for family caregivers of servicemembers with TBI. Several recommendations made by BIAA during the legislative drafting process were incorporated into the bill. A copy of BIAA’s Letter of Endorsement for S. 2921 will be available shortly on our website at http://www.biausa.org/policyissues.htm.

Also this week, a report was released by the Department of Veterans Affairs Inspector General which found that the VA is not providing the necessary standard of support and long-term follow-up assistance needed by veterans with TBI and their families.

In addition, after the House of Representatives passed by a veto-proof margin last week important legislation which would place a moratorium until March 2009 on several harmful Medicaid regulations (H.R. 5613), the fate of the bill was left up to the Senate. Earlier this week, Senate Majority Leader Harry Reid (D-NV) attempted to bring the bill up on the Unanimous Consent Calendar, but this attempt was blocked by Senator Coburn (R-OK). Now there is an effort to get the bill included in the FY 2008 Supplemental Appropriations bill. BIAA continues to strongly endorse H.R. 5613 and supports efforts to include the bill in the FY 2008 Supplemental Appropriations bill.

As a final note, BIAA is waiting to see if Congress will be able to establish a budget this year before sending out its Legislative Action Alert on FY 2009 TBI Appropriations. There is speculation that Congress may indeed be able to achieve a budget agreement in the upcoming next few weeks, and BIAA’s Appropriations Action Alert will be sent out shortly thereafter.

*Distributed by Laura Schiebelhut, BIAA Public Affairs Manager, on behalf of the Brain Injury Association of America; 703-761-0750 ext. 637; lschiebelhut@biausa.org

The Policy Corner is made possible by the Adam Williams Initiative, Centre for Neuro Skills, and Lakeview Healthcare Systems, Inc. The Brain Injury Association of America gratefully acknowledges their support for legislative action.
__________________________________________________________________

President Bush Signs TBI Act Reauthorization Bill Into Law

This week marked a major legislative victory for the brain injury community, as President Bush officially signed into law legislation reauthorizing the TBI Act (S. 793) on Monday, April 28! Congratulations to all BIAA state affiliates, advocates, and national stakeholders who helped make TBI Act reauthorization a reality.

BIAA issued a press release applauding this major accomplishment, noting that achieving successful reauthorization of the TBI Act has been BIAA’s biggest federal legislative priority this year.
BIAA President and CEO Susan Connors said, “TBI is recognized as a signature injury of the conflicts in Iraq and Afghanistan. The programs authorized by the TBI Act play a critical role in improving the nation’s ability to meet the needs of individuals with brain injury, military and civilian alike.”

This major policy accomplishment simply would not have been possible without the tremendous efforts of BIAA state affiliates, advocates, and collaboration among national stakeholders, as well as the leadership of numerous Members of Congress and the dedicated efforts of their staff members.

In particular, BIAA expresses profound appreciation for the leadership efforts of Senator Edward Kennedy, Senator Orrin Hatch, Representative Bill Pascrell, Representative Todd Platts, Representative John Dingell, and Representative Frank Pallone, all of whom played critical roles in ensuring the progress of this bill.

To view a copy of BIAA’s press release, please visit our website at http://www.biausa.org/policyissues.htm.

BIAA Strongly Endorses The Caring for Wounded Warriors Act of 2008

In other exciting news, BIAA proudly endorsed The Caring for Wounded Warriors Act of 2008 (S. 2921), legislation introduced on Monday, April 28 by Senator Hillary Rodham Clinton which would increase support for family caregivers of servicemembers with TBI. Several recommendations made by BIAA during the legislative drafting process were incorporated into the bill.

The bill would require two pilot programs to be implemented through the Department of Veterans Affairs, improving the resources available to those caring for returning servicemembers with TBI.

The first pilot program, which would provide for training, certification and compensation for family caregiver personal attendants for veterans and members of the Armed Forces with TBI, is very similar to a provision in last year’s Heroes At Home Act of 2007 (S. 1065/H.R. 3051), which BIAA also strongly endorsed.

The second pilot program would leverage existing partnerships between Veterans Affairs facilities and the nation’s premier universities, training graduate students to provide respite care for families caring for wounded warriors suffering from TBI.

Note: The legislation specifies that the curricula for the TBI Family Caregiver Personal Care Attendant Training and Certification Program “shall incorporate applicable standards and protocols utilized by certification programs of national brain injury care specialist organizations.” The legislation further specifies that the VA should also use such applicable standards and protocols in providing training for graduate student respite care providers.

A copy of BIAA’s Letter of Endorsement for S. 2921 will be available shortly on our website at http://www.biausa.org/policyissues.htm.

VA Inspector General Releases Report Criticizing TBI Care for Veterans

Also this week, a report was released by the Department of Veterans Affairs Inspector General which found that the VA is not providing the necessary standard of support and long-term follow-up assistance needed by veterans with TBI and their families.

The report, which was conducted at Senate Veterans Affairs Committee Chairman Daniel Akaka’s (D-HI) request, found specifically; “While case management has improved, long-term case management is not uniformly provided for these patients, and significant needs remain unmet.”

A copy of the report can be found at http://www.va.gov/oig/54/reports/VAOIG-08-01023-119.pdf.

TBI Act Reauthorization

0 comments

Posted on 15th April 2008 by Gordon Johnson in Uncategorized

, , , , , , , ,

From the Brain Injury Association of Wisconsin

  • TBI Act Reauthorization Update: Last week the US Congress passed legislation to reauthorize the Traumatic Brain Injury Act! The bill appears ready to be sent on to President Bush for his signature. In addition to authorizing ongoing CDC, NIH and HRSA TBI programs, the bill also authorizes a new study by the CDC and NIH in collaboration with the Dept. of Defense and the Dept. of Veterans Affairs to identify the incidence of brain injury among our veterans, especially veterans of Iraq and Afghanistan. Again, THANK YOU to all who took time to share their opinions with Congress regarding this legislation during the past year.
It takes a war or two, and badly thought out wars, to get some attention to brain injury and brain injury research. Congratulations to those advocates who got this bill passed. Certainly, the TBI act is important and helping our veterans with brain injury is important, too.

But how come the tail of the brain injury animal, war injuries, gets all of the research and attention? There are a million Subtle Brain Injuries© a year in the U.S. and perhaps, a few thousand in Iraq. What about all the civilians who have brain injuries? Isn’t it time we did some major research on those most likely to be disabled by brain injuries, those over 40 – especially women over 40, those with prior head injuries and those with co-morbid issues such as other neurologic or emotional disorders?

A Subtle Brain Injury is a complicated synergistic maze. Limiting our research to young jocks and war casualties is not going to enlighten us as to why some people have apparent full recoveries and others never get better. It is not an accident that there is consistently 10-15% of those with concussions who wind up with persistant post concussion syndrome. Let us start screaming louder so that the real pathology in those cases is understood, and treated.

Another Brain Injury Goodbye

0 comments

Posted on 10th April 2008 by Gordon Johnson in Uncategorized

, , , , , ,

Yesterday I dedicated this blog to the death of a great pioneer in the field of brain injury, Bryan Jennett, M.D. of the GCS scale. Today, I would like to give best wishes to a former advocacy colleague of mine, Pat David, of the Brain Injury Association of Wisconsin. I joined this organization in 1994 and became a member of its board for several years thereafter. Pat was the rock of that organization since that time and today announced her retirement. It comes with some good news, the passing in the House of Representatives of the TBI Act.

Here is the BIAW’s press release relative to Pat:

Dear Members & Donors:

I wanted to inform you of my pending retirement from the Brain Injury Association in June of 2008. I am so grateful for the past fifteen years and the opportunity to serve individuals with brain injury and their families in Wisconsin. I want to thank you, our members and donors, because it is your support that is the foundation upon which this organization was built and will grow. It has been a true privilege for which I am grateful.

Our Board of Directors is currently in the process of screening applicants for the Executive Director position and establishing a process for interviewing. We are also receiving input from our collaborative partners from the Dept. of Health and Family Services and the WI Brain Injury Advisory Council. Our plan is to have an individual in place before my departure to facilitate a smooth transition. I will keep you informed as that process further evolves.

I also need to share some breaking news….Yesterday, the US House of Representatives passed legislation to reauthorize the TBI Act (S. 793), by a vote of 392-1. The bill authorizes programs over the period of FY 2009 through FY 2012. Thanks to all who made their opinions known by contacting their Representative! The bill will next go to the US Senate once again, where approval is expected. Pending passage in the Senate, it would then be sent on to the President for his signature.

Thank you and do not hesitate to contact us at admin@biaw.org or 1-800-882-9282 with questions.

Sincerely yours,
Pat David
Director of Operations

Pat, your absence will be felt and I trust that your successor will do his or her best to carry on your mission.